TLP #28 : Curing with a Community - David Fajgenbaum

Did you like the episode? Text us a message! In this episode, we kick off our Season 3 guests with David Fajgenbaum who shares his extraordinary journey to cure himself from Castleman disease.David shares his very personal story of searching for a cure to his own diseaseHe describes how having a vision for the future helped him to surviveHe insists that patients can be part of the process and can be active collaborators in the search for curesHe pleads for a shift from an Investigator initiated model to a Community initiated model involving collaboration between researchers, clinicians and patientsDavid also insists that approved drugs could be used to treat additional diseasesHe tells us about why and how he wrote a book, “Chasing My Cure” about his journeyHe describes the value that good mentors bringHe advises to keep focused, surround yourself with good people, learn to delegate and to take important recruitment decisionsDavid recommends getting as much feedback as you can from many peopleHe mentioned these labs, scientists, institutions and companiesUniversity of Pennsylvania School of Medicine : https://www.med.upenn.edu/Georgetown University : https://www.georgetown.edu/Castleman Disease Collaborative Network : https://cdcn.org/Castleman Disease : https://rarediseases.org/rare-diseases/castlemans-disease/University of Oxford : https://www.ox.ac.uk/National Institutes of Health (NIH) : https://www.nih.gov/Janet Woodcock from the FDA : https://en.wikipedia.org/wiki/Janet_WoodcockBrian Wallach : https://en.wikipedia.org/wiki/Brian_WallachI am ALS : https://www.iamals.org/Frits van Rhee : https://cdcn.org/leadership-team/frits-van-rhee/ | https://uams-triprofiles.uams.edu/profiles/display/127377Sharon Terry : https://en.wikipedia.org/wiki/Sharon_F._TerryArthur Rubenstein : https://www.med.upenn.edu/endowedprofessorships/arthur-h-rubenstein-university-professorship.htmlBenjamin Castleman : https://en.wikipedia.org/wiki/Benjamin_CastlemanTo find out more about David and Every Cure visit these links  X-Twitter  : @DavidFajgenbaum Every Cure https://twitter.com/EveryCureDavid’s LinkedIn https://www.linkedin.com/in/davidfajgenbaum/Every Cure’s LinkedIn : https://www.linkedin.com/company/every-cure/David’s Book “Chasing My Cure: A Doctor's Race to Turn Hope Into Action” : https://chasingmycure.com/You want to support our work ? Buy us a coffee !  ==> https://www.buymeacoffee.com/lonelypipetteTo find out more about Renaud and Jonathan : Twitter : https://twitter.com/LePourpre LinkedIn : https://www.linkedin.com/in/renaudpourpre/ Twitter : https://twitter.com/Epigenetique LinkedIn : https://www.linkedin.com/in/jonathanweitzman/%20 More about the soundtrack :Music by Amaria - Lovely Swindler https://soundcloud.com/amariamusique/