#SyngapCensus, #UFDCure Cannonball, Scramble, PRAX-222 & ciitizen, and a #mustread — #S10e118

#SyngapCensus
https://www.syngapresearchfund.org/post/syngapcensus-2023-update-59-in-q3-2023-total-1-297


#UFDCure Cannonball - October 4-6
https://www.syngapresearchfund.org/cannonball
Effie on CBall https://effieparks.com/podcast/effisode-074-syngap-cannonball-for-a-cure
Pre-party https://x.com/UFDTech/status/1709366677261987862
 
Scramble - October 7, 2023
Stories https://www.syngapresearchfund.org/podcast-episodes/syngap1-stories-episode-019
Site
https://www.syngapresearchfund.org/families/scramble-for-syngap-syngap-research-fund
 
PRAX-222 & ciitizen
Marcio https://youtu.be/ibgINIFPFRk?si=Rtxe3rlTUWdMYGvg
Pressers
9/20 https://www.prnewswire.com/news-releases/invitaes-real-world-ciitizen-data-utilized-in-praxis-precision-medicines-prax-222-ind-filing-301627677.html 
10/2 https://investors.praxismedicines.com/news-releases/news-release-details/praxis-precision-medicines-provides-portfolio-update-2023-rd-day 
 
#mustread
Essay by Jennifer: https://effieparks.com/blog/2023/9/30/sometimes-there-is-no-silver-lining 
Book: https://www.amazon.com/Self-Compassion-Proven-Power-Being-Yourself/dp/0061733520/ 
 
Wild Type Campaign
https://www.bonfire.com/wild-type-syngap1-1/ 
 
Conference - Sign up by Halloween - We need head counts.
Registration link: https://Syngap.Fund/Orlando  
Hotels: https://Syngap.Fund/2023hotel 
Shirts: https://www.bonfire.com/srf-syngap1-conference-2023/ 

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Sign up for ciitizen!
Sign up for CHOP!
Volunteer!
Give us 5 stars everywhere.  Like Apple podcasts: https://podcasts.apple.com/us/channel/syngap1-podcasts-by-srf/id6464522917
 
This is a podcast: subscribe to and rate this 10 minute #podcast #SYNGAP10 here - https://www.syngapresearchfund.org/syngap10-podcast

Episode 118 of #Syngap10 - October 3, 2023
#epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat