Ramona Jarvis will talk about her daughter Lelia who was diagnosed with Stage 4 High Risk Neuroblastoma in the summer of 2017 when she was 19 months old, and is now 7 years past her original diagnosis and is living her best life possible.

When Ramona Jarvis's 19 month old daughter Leila was running on and off fevers, she was told by Leila's doctors that these were caused by viruses and that her fevers would go away. Unfortunately that was not the case and during that summer of 2017 , Leila was diagnosed with High Risk Stage 4 Neuroblastoma. After a harrowing regiment of treatments which included 132 days of being an inpatient, Leila was put on a DFMO Clinical Trial at the Arnold Palmer Children's Hospital in November of 2018 which ended in 2020. Today, Leila is 4 years past this Clinical Trial and thankfully is both doing and feeling well.